West Virginia Lymphedema Network

Compiled by the West Virginia Lymphedema Network –
A volunteer group of medical professionals and patients helping people diagnosed with lymphedema.

Doctors Experienced with Lymphedema Who Will Make Referrals for Lymphedema Therapy

Dr. Rashida Khakoo, MD, FACP, MSc – 304-293-3306
Infections Specialist, Section Chief, WVU School of Medicine, 2177 HSN, PO Box 9163, Morgantown, WV 26506. Education & Specialty Training: Makerere University, George Washington University, University of Florida. Board Certification(s): Internal medicine, infectious diseases. Special Interests: Antimicrobial therapy, Hepatitis, Parasitic diseases, Influenza, Hospital epidemiology.

Bruce Jenkins – 304-285-2700. Mon Healthcare Equipment and Supplies, 1159 Van Voorhis Rd, Morgantown, WV 26505. email: monhealthcare@monhealthsys.org. http://www.monhealthsys.org/affiliates.cfm?section=supplies

Sue Faloon and Pat Clark, Patient Care Coordinators – 304-599-6500; Fax: 304-599-6551. Compression Management Services, Inc./The Lymphedema Centers, 2000 Hampton Center, Suite F, Morgantown, WV 26505. The company offers top quality in care and products as well as applications and insurance coverages to patients who suffer from edema, lymphedema,varicose veins, venous insufficiency or any type of swelling. http://www.compressionmanagement.com

Missy Wilburn – 1-800-696-3170 or 304-722-2233 Loop Pharmacy & Home Medical, 62 Sixth Ave, St. Albans, WV 25177

Sue Faloon and Pat Clark, Patient Care Coordinators – 304-599-6500; Fax: 304-599-6551. Compression Management Services, Inc./The Lymphedema Centers, 2000 Hampton Center, Suite F, Morgantown, WV 26505. http://www.compressionmanagement.com Carolyn Alexander –1-800-606-7655. Alexander Health Services, 934 Durham Rd #7, Wake Forest, NC 27587

Missy Wilburn – 1-800-738-7743 or 304-722-2233. Loop Pharmacy & Home Medical, 62 Sixth Ave, St. Albans, WV 25177

Tracy Novak – 304-292-2105 or tracy@wvlymph.org: West Virginia Lymphedema Network, 309 Grandview Ave., Morgantown, WV 26501

“Living Well with Lymphedema” by A. Ehrlich, A. Vinjé-Harrewijn PT, CLT and E. McMahon PhD.: “This book is upbeat and positive while dealing with a condition that can be overwhelming. A wide range of patient situations are represented and this will be helpful to many patients.” Deborah G. Kelly PT, MSEd, CLT-LANA
“Overcoming the Emotional Challenges of Lymphedema” by Elizabeth McMahon PhD.: "Empowering and practical, with exercises the reader can jump right into and know they are taking steps to help themselves. I love the emphasis throughout the book that the patient is in control." Christine P. Thomas, MSPT, CLT-LANA
“Coping with Lymphedema” by Joan Swirsky, Diane Sackett.: Two copies available at the Morgantown Library. Can be ordered on the Internet or from local bookstores.
“Lymphedema: A Breast Cancer Patient’s Guide to Prevention and Healing” by Jeannie Burt, Gwen White, PT.: Can be ordered on the Internet or from local bookstores.

National Lymphedema Network: www.lymphnet.org/
The Lymphatic Research Foundation: www.lymphaticresearch.org/
Circle Of Hope Lymphedema Foundation, Inc.: www.lymphedemacircleofhope.org
Lymph Notes: www.lymphnotes.com; Lymph Notes is an online information resource for those with lymphedema or at risk for it. This site covers a wide range of lymphedema related topics and provides the opportunity for members to post questions, suggestions, stories, and comments.
LookHealthFit.com: http://www.lookhealthfit.com; General health directory but with lots of links to lymphedema information if you use their search engineer.

www.lymphnet.org/online-store/scstore/: Self-Care for LE Patients: Upper Extremity; Self-Care for LE Patients: Lower Extremity; Lymphedema Exercises for the Upper Extremities; Lymphedema Exercises for the Lower Extremities